29/9/2025
Panel from the CURA Project Institute discusses the patient's voice, unpublished data and clinical research advances at the 12th TJCC
On September 17, the CURA Project Institute promoted the panel “From Care to Partnership: Connecting Patients and Researchers” during the 12th All Together Against Cancer Congress (TJCC). The meeting was a space for dialogue and reflection on the present and future of clinical research in Brazil, bringing together patients, doctors and researchers in an essential conversation to broaden society's understanding of the topic.
Throughout the panel, different voices brought complementary perspectives:
* The Patient's Voice — Dr. Renata Rodrigues da Cunha Colombo Bonadio, who experienced cancer as a patient, and Izabel Masetti shared experiences that reinforce the importance of listening to those living with the disease and research in practice.
* What patients tell us — Oncologist and researcher Dr. Heloisa Resende presented unprecedented results from the national survey of cancer patients conducted by CURA. The study revealed that 90% of respondents believe that clinical research is beneficial to society, but half still perceive more risks than benefits. The data highlights the continuous need for education and training of the population on the subject.
* Research without frontiers — Oncologist Dr. Max Mano brought a global perspective, showing that the advancement of clinical research goes beyond economic factors, also involving regulatory and structural issues that can transform the scenario even in developing countries.
* Connecting patients and clinical studies — The president of CURA, Fernanda Schwyter, reinforced the Institute's mission to raise awareness, empower, generate data, promote public policies and create real tools for accessing information, such as the Patient Committee and the new platform launched during the event.


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CURA platform: information and access in one place
During the panel, the CURA Platform was launched, a free, intuitive and easy-to-navigate tool that gathers reliable information about ongoing clinical research in Brazil. The initiative, supported by LACOG and curated by Dr. Taiane Rebelatto, is enough to break down barriers, expand access and create new opportunities for patients and doctors.
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Access, share, and publicize: Www.platformacura.org
The platform is currently undergoing tests and adaptations, and will soon have 100% of its navigation available, offering a complete experience to users.
With this concrete step, the CURA Project Institute reaffirms its commitment to building bridges between patients and researchers, breaking myths, giving voice to those living the cancer journey and making clinical research more understood and accessible to all.